Todd Daniels

St. Marys, Georgia. The Camden County Tribune & Georgian Newspaper local news source.

2008-12-31T19:02:00.000-05:00

Daniels still honors her brother by being named honorable mention All-State

Todd Daniels Gravestone

2008-07-09T18:26:00.001-05:00

Homerun

2008-05-03T06:49:00.002-05:00

HOMERUN
by Juventina Ochoa ( Todd's cousin )

It's a sunny day,no chance of rain.
It's time for you to play your last game.
The scores four to one,
the bases loaded all you need is one homerun.
You're up to bat,the first pitch strike one,and then strike two.
Your doubts are low,your scared,your nervous but it never shows.
You pray to God you hit this one.
The pitcher winds up and he throws.SMACK! There it goes.
So high, so far,it disappears into the light of the sun. The crowd
cheers.
You're so excited you forget to run.
You start out slow,when you hit base one,you let the energy flow.
Base two and then base three,your almost home.
Inches from home plate you slam on brakes, you stand there and stare
into the sun.
It gets brighter, a stairway appears.
There God stands about midway and he cheers,
" COME ON TODD. Come run to home. This will be the start of you new
game. Come play with the angels.You'll get to fly."
You got your homerun,you won the game.
You get to play as much as you like now.
So, why is it that we shed our tears,
is it because we have fear with you not here.
Just remember we love you and will never forget you.
We didn't want you to go,you may have not wanted to go either,
but its time for your HOMERUN.
****************************
In Memory of Todd Daniels
www.todddaniels.blogspot.com

Try Fastmail
http://www.fastmail.fm/mail/?STKI=391345

The Many Faces of MLD

2008-04-25T13:49:00.001-05:00

MLD Foundation

In Memory of Todd Daniels Guestbook

2008-04-22T04:52:00.005-05:00

Leave your comments here for the family of Todd Daniels. All comments are moderated before being posted. Anyone abusing this will have their comments removed, and will be reported.
You will have to have a Google account ( GMail, etc... ), to leave a message here.
Click on the above title of this post, or go directly here:
In Memory of Todd Daniels Guestbook
to post.

Todd Daniels

2008-04-20T09:48:00.001-05:00

On Sunday, April 19, 2008 at 6:00am Todd entered into his new life of an
Angel.
He was surrounded by family and friends.

- Bobbie Daniels ( Mother of Todd )

Fwd: Todd Daniels, Thursday, 4-17-08

2008-04-17T08:24:00.001-05:00

Hi Everyone,

Just thought I would let everyone know that Todd is not doing very well.
His kidneys and lungs are shutting down. Today they might take his
feedings away. We will find out later. I will try to keep everyone
updated.

Love,
Bobbie ( Todd's Mom )

Todd's song by Ray King

2008-04-13T10:26:00.001-05:00

Sat, 12 Apr 2008
Todd is not doing well. He had to be catheterized today. They think
his kidneys is starting to shut down.
I spoke with Ray King and he said that he is more than happy to have
this put on Todd's Website.
- Bobbi ( Todd's Mom )

Mon, 25 Feb 2008
This was given to me today by the Social Worker ( Ray King ) from
Hospice. He wrote
Todd that wonderful song and this will be sung at Todd's funeral.
Christmas time he wrote Todd a beautiful poem also.
Hospice has just been a god send to us. They have become very close to
us and treat us as we are family.
Ray thinks so much of Todd and he said this came from his heart.
I just had to share this with all of you.
- Bobbi ( Todd's Mom )

TODDI'S SONG

He had a smile wider than the grand canyon
His eyes were bluer than the bluest skies could be
And though he couldn't speak by the time I met him
His eyes and smile they spoke volumes to me.

And I knew from the moment that I met him.
That my life would be profoundly changed.
Because God places angels among us
I'd met one and Toddi was his name.

And this much I know:
He was loved
Well cared for
Couldn't ask for nothing more
Everything he needed here he had

Love his movies
T.V. shows
He was always on the go
With his sister
And his Mom and Dad

Got that Dog
Her name was Bella
He was such a lucky fella
Oh, the comical times they all had

And before he took his last breath
As that final pitch was thrown
Toddi stepped up to the plate
Smacked that ball and headed HOME

He had a smile wider than the grand canyon
His eyes were bluer than the bluest skies could be
And though he couldn't speak by the time I met him
His life, his eyes, his smile spoke volumes to me……

His life, his eyes, his smile spoke volumes to me…….

I believe he was an angel among us.

Written by: Ray King
February 2008

an update on Todd Daniels written by his Aunt Lisa

2008-03-23T18:25:00.003-05:00

HI EVERYONE, JUST WANTED YOU TO KNOW THAT MY NEPHEW TODD ISN'T DOING VERY GOOD ,,,THE HOSPICE TOLD MY SISTER IT'S A MATTER OF TIME NOW ,,,HIS ORGANS ARE SHUTTING DOWN ALREADY AND HIS FINGERS AND TOES ARE TURNING BLUE,,,,,,EVERYONE PLEASE SEND UP A PRAYER FOR HIM AND MY SISTER AND HER FAMILY. IT IS VERY HARD RIGHT NOW,,,I WAS THERE THIS WEEK WITH THEM.,,,,,LISA

update on Todd written by his mother

2008-02-26T05:53:00.002-05:00

We all know that the time is getting closer and closer. The nurse was
here today and she hears a fine bronchi sound in his lungs. We have to
really keep an eye on his feedings. He has to rest at least 4 to 5
hours between today before we can give him, his next feeding.
But I know when that dreadful day comes. That Todd will be able to run
and play baseball.
I Love him so much.
He is and forever will be my heart, soul, hero and angel.
Bobbie

Metachromatic Leukodystrophy

2007-11-11T07:51:00.000-05:00

http://www.mayoclinic.org/metachromatic-leukodystrophy/

Todd's sister Whitney won National Softball Championship in Ocoee.

2007-07-31T08:23:00.002-05:00

Todd's sister Whitney won National Softball Championship in Ocoee.
http://www.fast-sports.com/16u1.htm

Whitney's team River City Rebels from Jacksonville won an National Softball Championship last night in Ocoee, FL.

She was #2. They played all week long.
In the picture, Whitney is the tallest one behind the flag.

more pics of Todd with his new puppy

2007-07-15T14:55:00.001-05:00

Todd's Puppy

2007-07-14T07:32:00.001-05:00

This is Todd with his puppy and his hospice nurse.

[Fwd: TODD]

2007-01-28T07:51:00.002-05:00

>From Todd's Aunt:
I wanted to let you know Todd isn't feeling to good at this time..., his Mom told me he isn't holding his milk down and they had to change his feedings it takes almost 10 to 12 hours now to do a feeding because he is throwing up his milk,,,also with is medicine the same thing is happening.

Merry Christmas from the Daniels Family 2006

2006-12-23T08:54:00.000-05:00

Metachromatic Leukodystrophy web site links

2006-10-10T10:32:00.002-05:00

Metachromatic Leukodystrophy web site links:

http://www.ninds.nih.gov/disorders/metachromatic_leukodystrophy/metachromatic_leukodystrophy.htm

http://www.emedicine.com/ped/topic2893.htm

http://healthlink.mcw.edu/article/921440824.html

http://www.mldfoundation.org/

http://www.wrongdiagnosis.com/m/metachromatic_leukodystrophy/intro.htm

http://en.wikipedia.org/wiki/Metachromatic_leukodystrophy

http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Leukodystrophy%2C%20Metachromatic

http://www.nlm.nih.gov/medlineplus/ency/article/001205.htm

http://en.wikipedia.org/wiki/The_Myelin_Project

http://www.myelin.org/

http://www.mldfamily.org/

http://todddaniels.blogspot.com/

http://odinslair.blogspot.com/2006/10/metachromatic-leukodystrophy.html

--
========================

The Greatest

2006-06-30T09:52:00.000-05:00

Hear the song:
http://www.baseball-almanac.com/poetry/thegreatest.ram

The above link is just a clip to a 32 second sample.
Requires RealMedia Player, or Alternative.

Links to full versions of the song:
http://www.simplyangel.com/angelfiles/MidiPageMusic/KennyRogers-GreatestBaseballPlayerOfAllS.A..wav

Most media Players will play the above link.
http://www.scrabaseball.com/thegreatest.rm
Requires RealMedia Player, or Alternative.

The Greatest

by Kenny Rogers (1999)

The Greatest

Little Boy, in a baseball hat
Stands in the field with his ball and bat
Says I am the greatest player of them all
Puts his bat on his shoulder and he tosses up his ball

And the ball goes up and the ball comes down
Swings his bat all the way around
The world's so still you can hear the sound
The baseball falls to the ground

Now the little boy doesn't say a word
Picks up his ball, he is undeterred
Says I am the greatest there has ever been
And he grits his teeth and he tries it again

And the ball goes up and the ball comes down
Swings his bat all the way around
The world's so still you can hear the sound
The baseball falls to the ground

He makes no excuses, He shows no fears
He just closes his eyes and listens to the cheers

Little boy, he adjusts his hat
Picks up his ball, stares at his bat
Says I am the greatest the game is on the line
And he gives his all one last time

And the ball goes up like the moon so bright
Swings his bat with all his might
And the world's so still as still can be
And the baseball falls, and that's strike three

Now it's supper time and his mama calls
Little boy starts home with his bat and ball
Says I am the greatest that is a fact
But even I didn't know I could pitch like that

The Greatest

http://www.baseball-almanac.com/poetry/po_sk-rogers.shtml

Fwd: UPDATE

2006-06-29T15:42:00.000-05:00

another update from Todd's aunt.

HI EVERYONE

I JUST TALKED TO BOBBIES MOTHER-IN-LAW ON THE PHONE SHE TOLD ME TODD OPENED HIS EYES THIS MORNING FOR ABOUT 30 MINUTES AND A NURSE WILL BE THERE TODAY TO SEE HIM,,,I GUESS PRAYERS ARE ANSWERED,,,,LISA

--
========================
http://todddaniels.blogspot.com/

Todd Daniels update 6-29-06

2006-06-29T08:53:00.000-05:00

A message sent by Todd Daniels aunt.

- Jamie

Sent: Thursday, June 29, 2006 12:58 AM

Subject: todd

hi everyone

just wanted to let you know todd is not doing well,bobbie said he will not even open his eyes hardly,,,today hospice went there to evelauate him and now they will go 2 times a week for now ,,,everyone please pray for TODD he is a very loving lil boy ,,,,i want him to stay with us as long as we can keep him,,,,,,,,lisa

--
========================
http://todddaniels.blogspot.com/

Todd with Family

2006-05-31T14:18:00.000-05:00

more pictures of Todd part 2

2006-05-31T14:16:00.000-05:00

more pictures of Todd

2006-05-31T14:09:00.000-05:00

Todd the Patriot

2006-05-25T19:03:00.000-05:00

Update on Todd Daniels 5-25-06

2006-05-25T17:39:00.000-05:00

I finally got a chance to sit down and give you some updates.

Todd is pretty stable right now.

He now has Scoliosis really bad. They wanted to put a rod in his back, but we decided against that. Eventually he will have a compressed lung. Which they wanted to do a trache to help with his breathing. We also decided against that. I just can't see him going thru all of that. We are now thinking of quality of life not quantity.

When he has problems breathing, we have to reposition him, which makes him breathe better.

His school is out for the summer and he will be going into the 3rd grade.

Just the other day he received a package from the Atlanta Braves. They sent him a hat, pennant, ball, bracelet, cards & notebook. It was very nice.

He really still loves to watch TV. He is watching SandLot right now. He loves it.
- Bobbie Daniels
Mother of Todd Daniels

Todd Daniels

2006-04-19T17:16:00.000-05:00

Todd Daniels

I read this and the thoughts of 3 years ago went thru my head. Todd doing the same thing. It has been a miracle that he is still with us, but we take it day by day and keep him happy. I just wish he could do it again. He loved baseball, he would not go anywhere without an baseball hat and glove. He seemed to sleep and eat baseball. I just wonder sometimes if he thinks about it. I know one of these days he will be able to play again. Then he can hit his GRAND SLAM!!

- Bobbie Daniels

Todd Daniels Mother

http://todddaniels.blogspot.com/

Subject: a story we should all read

You make the choice! Don't look for a punch line; There isn't one! Read it anyway. My question to all of you is: Would you have made the same choice?

At a fundraising dinner for a school that serves learning disabled children, the father of one of the students delivered a speech that would never be forgotten by all who attended. After extolling the school and its dedicated staff, he offered a question:

"When not interfered with by outside influences, everything nature does is done with perfection. Yet my son, Shay, cannot learn things as other children do. He cannot understand things as other children do. Where is the natural order of things in my son?"

The audience was stilled by the query.

The father continued. "I believe, that when a child like Shay, physically and mentally handicapped comes into the world, an opportunity to realize true human nature presents itself, and it comes, in the way other people treat that child.â€ Then he told the following story:

Shay and his father had walked past a park where some boys Shay knew were playing baseball. Shay asked,â€ Do you think they'll let me play?" Shay's father knew that most of the boys would not want someone like Shay on their team, but the father also understood that if his son were allowed to play, it would give him a much-needed sense of belonging and some confidence to be accepted by others in spite of his handicaps.

Shay's father approached one of the boys on the field and asked if Shay could play, not expecting much. The boy looked around for guidance and said, "We're losing by six runs and the game is in the eighth inning. I guess he can be on our team and we'll try to put him in to bat in the ninth inning."

Shay struggled over to the team's bench put on a team shirt with a broad smile and his Father had a small tear in his eye and warmth in his heart. The boys saw the father's joy at his son being accepted. In the bottom of the eighth inning, Shay's team scored a few runs but was still behind by three. In the top of the ninth inning, Shay put on a glove and p layed in the right field. Even though no hits came his way, he was obviously ecstatic just to be in the game and on the field, grinning from ear to ear as his father waved to him from the stands. In the bottom of the ninth inning, Shay's team scored again. Now, with two outs and the bases loaded, the potential winning run was on base and Shay was scheduled to be next at bat.

At this juncture, do they let Shay bat and give away their chance to win the game? Surprisingly, Shay was given the bat. Everyone knew that a hit was all but impossible 'cause Shay didn't even know how to hold the bat properly, much less connect with the ball.

However, as Shay stepped up to the plate, the pitcher, recognizing the other team putting winning aside for this moment in Shay's life, moved in a few steps to lob the ball in softly so Shay could at least be able to make contact. The first pitch came and Shay swung clumsily and missed. The pitcher again took a few steps forward to toss the ball softly towards Shay. As the pitch came in, Shay swung at the ball and hit a slow ground ball right back to the pitcher.

The game would now be over, but the pitcher picked up the soft grounder and could have easily thrown the ball to the first baseman. Shay would have been out and that would have been the end of the game.

Instead, the pitcher threw the ball right over the head of the first baseman, out of reach of all team mates. Everyone from the stands and both teams started yelling, "Shay, run to first! Run to first!" Never in his life had Shay ever ran that far but made it to first base. He scampered down the baseline, wide-eyed and startled.

Everyone yelled, "Run to second, run to second!"
Catching his breath, Shay awkwardly ran towards second, gleaming and struggling to make it to second base. By the time Shay rounded towards second base, the right fielder had the ball, the smallest guy on their team, who had a chance to be the hero for his team for the first time. He could have thrown the ball to the second-baseman for the tag, but he understood the pitcher's intentions and he too intentionally threw the ball high and far over the third-baseman's head. Shay ran toward third base deliriously as the runners ahead of him circled the bas es toward home.

All were screaming, "Shay, Shay, Shay, all the Way Shay"

Shay reached third base, the opposing shortstop ran to help him and turned him in the direction of third base, and shouted, "Run to third! Shay, run to third" As Shay rounded third, the boys from both teams and those watching were on their feet were screaming, "Shay, run home! Shay ran to home, stepped on the plate, and was cheered as the hero who hit the "grand slam" and won the game for his team.

That day, said the father softly with tears now rolling down his face, the boys from both teams helped bring a piece of true love and humanity into this world.

Shay didn't make it to an other summer and died that winter, having never forgotten being the hero and making his Father so happy and coming home and seeing his Mother tearfully embrace her little hero of the day!

AND, NOW A LITTLE FOOTNOTE TO THIS STORY: We all send thousands of jokes through the e-mail without a second thought, but when it comes to sending messages about life choices, people think twice about sharing. The crude, vulgar, and often obscene pass freely through cyberspace, but public discussion about decency is too often suppressed in our schools and workplaces.

If you're thinking about forwarding this message, chances are that you're probably sorting out the people on your ad dress list that aren't the "appropriate" ones to receive this type of message. Well, the person who sent you this believes that we all can make a difference. We all have thousands of opportunities every single day to help realize the "natural order of things." So many seemingly trivial interactions between two people present us with a choice: Do we pass along a little spark of love and humanity or do we pass up that opportunity to brighten the day of those with us the least able, and leave the world a little bit colder in the process?

A wise man once said every society is judged by how it treats it's least fortunate amongst them.

May your day, be a Shay Day, sunny today tomorrow & always

jamiet's reviews

2006-04-19T08:34:00.000-05:00

jamiet's reviews

Regarding my cousin Todd, and his battle with Metachromatic Leukodystrophy.

http://jamiet.stumbleupon.com/review/2084743/

Whitney and Todd Daniels

2005-04-11T10:51:00.000-05:00

Whitney & Todd

The Daniels Family

2005-04-11T10:49:00.000-05:00

The Daniels Family

Doug and Bobbie Daniels

2005-04-11T10:48:00.000-05:00

Doug & Bobbie Daniels

MLD Foundation - Support for Families With Metachromatic Leukodystrophy (MLD)

2005-02-13T13:16:00.000-05:00

MLD Foundation - Support for Families With Metachromatic Leukodystrophy (MLD)

P.S. Please Excuse The Mess!

2005-02-13T12:33:00.000-05:00

Please Excuse The Mess!

Hi,
I am in the process of working on this blog. It was my intention that my first posts started at the top of this page, and not at the bottom, I hope to get this corrected soon.
Please bear with me.
- Jamie
P.S. Todd is my 2nd cousin, his mother: Bobbie & I are first cousins, our fathers were identical twins.
I hope this blog will bring about a greater awareness for this disease.
My other blogs: http://odinslair.blogspot.com/

2005-02-13T12:29:00.000-05:00

Todd at zoo 2

2005-02-13T12:27:00.000-05:00

Todd at zoo 3

2005-02-13T12:26:00.000-05:00

Todd at zoo

2005-02-13T12:24:00.000-05:00

Disney trip2

2005-02-13T12:23:00.000-05:00

Todd's class picture

2005-02-13T12:12:00.001-05:00

Disney trip 1

2005-02-13T12:12:00.000-05:00

Funny Todd & 2 Mrs. B's

2005-02-13T12:11:00.000-05:00

Todd & Mrs. Boekel

2005-02-13T12:10:00.000-05:00

Todd at Zoo 1

2005-02-13T12:08:00.000-05:00

Todd kissing Mrs. Boekel

2005-02-13T12:06:00.000-05:00

Todd & Fireman

2005-02-13T12:04:00.001-05:00

2 Mrs. B's & Todd

2005-02-13T12:02:00.000-05:00

fireman Todd

Please Excuse The Mess!

2005-02-13T11:44:00.000-05:00

Original Todd Daniels Web Page

2005-02-13T11:29:00.001-05:00

The Original Todd Daniels Web Page
About the WebDesigner:
My name is Mike Potter, I am a Sr. Staff Consultant for Verizon and by no means a web designer.
After reading and responding to a post created by Jamie on the techtv forums,
I offered what assistance I could provide for Todd.
I am proud to help in any way I can.
*******************************
I want to thank Mr. Potter for all of his help, especially with the domain name registration, etc... . His help won't be forgotten, and may God bless him and his family.
- Jamie
my new Todd Daniels blog

show your support

2005-02-13T11:24:00.000-05:00

show your support

eMedicine article

2005-02-13T11:20:00.000-05:00

eMedicine Article

University of Maryland Medical Center Article

2005-02-13T11:17:00.000-05:00

University of Maryland Medical Center Article

United Leukodystrophy Foundation: The leukodystrophies are = genetically determined progressive disorders that affect the brain, = spinal cord and per

2005-02-13T11:13:00.001-05:00

United Leukodystrophy Foundation: The leukodystrophies are = genetically determined progressive disorders that affect the brain, = spinal cord and peripheral nerves. The term leukodystrophy derives from = the Greek words "leuko" meaning white and referrin

Australian Leukodystrophy Support Group Inc

2005-02-13T11:13:00.000-05:00

Australian Leukodystrophy Support Group Inc

NORD Article

2005-02-13T11:12:00.001-05:00

NORD Article

MLD Foundation - Support for Families With Metachromatic Leukodystrophy (MLD)

2005-02-13T11:12:00.000-05:00

MLD Foundation - Support for Families With Metachromatic Leukodystrophy (MLD)

The Myelin Project: An Overview

2005-02-13T11:11:00.000-05:00

The Myelin Project: An Overview

Todd Daniels Benefit Ride hosted by TRU-RYDERS MOTORCYCLE CLUB OF JACKSONVILLE

2005-02-13T11:07:00.000-05:00

Todd Daniels Benefit Ride hosted by TRU-RYDERS MOTORCYCLE CLUB OF JACKSONVILLE

Todd Daniels needs and gets community support by First Coast News | Local News

2005-02-13T10:58:00.000-05:00

First Coast News | Local News: "Todd Daniels needs and gets community support"

First Coast News Report

Hi-Speed Video Clip

Lo-Speed Video Clip

Todd Daniels Support Fund

2005-02-13T10:50:00.000-05:00

If you would like to help you can write a check to Todd's School in his name.
Or, you can call the school for more information. Here is that information:

Todd Daniels Support Fund
C/O Sugarmill Elementary
2885 Winding Road
St. Marys, GA 31558

Phone: 912-882-8191

Metachromatic Leukodystrophy Information Page: National Institute of Neurological Disorders and Stroke (NINDS)

2005-02-13T10:48:00.000-05:00

Metachromatic Leukodystrophy Information Page: National Institute of Neurological Disorders and Stroke (NINDS)

A Little about Todd's Parents

2005-02-13T10:35:00.000-05:00

A Little about Todd's Parents
My name is Bobbie Daniels and I am Todd's mother.

Todd's dad, Doug and I met at a high school basketball game in 1988. We were rivals. I was a junior and Doug was a senior. We started dating.

Doug graduated in 88 and started going to college. In the spring of 89 he went into the Navy.

I graduated in 89 and we married in Sept. of 89. Doug and I were stationed at La Maddalena, Italy for 2 years. I came home in 91 to have my daughter Whitney. Whitney and I then went back to Italy till October 1991. We then transferred to Charleston, South Carolina till June 93. From there we were in Orlando, FL till June 96.

Description of Metachromatic leukodystrophy

2005-02-13T10:33:00.000-05:00

Description of Metachromatic leukodystrophy.

Reference: National Institute of Neurological Disorders and Stroke
http://www.ninds.nih.gov/index.htm

Metachromatic leukodystrophy (MLD) is a genetic disorder caused by a deficiency of the enzyme arylsulfatase A. It is one of a group of genetic disorders called the leukodystrophies that affect growth of the myelin sheath, the fatty covering -which acts as an insulator - on nerve fibers in the brain. There are three forms of MLD: late infantile, juvenile, and adult. In the late infantile form, which is the most common, onset of symptoms begins between ages 6 months and 2 years. The infant is usually normal at birth, but eventually loses previously gained abilities. Symptoms include hypotonia (low muscle tone), speech abnormalities, loss of mental abilities, blindness, rigidity (uncontrolled muscle tightness), convulsions, impaired swallowing, paralysis, and dementia. Symptoms of the juvenile form begin between ages 4 and 14, and include impaired school performance, mental deterioration, ataxia, seizures, and dementia. In the adult form, symptoms, which begin after age 16, may include impaired concentration, depression, psychiatric disturbances, ataxia, tremor, and dementia. Seizures may occur in the adult form, but are less common than in the other forms. In all three forms mental deterioration is usually the first sign.

Todd Daniels and Metachromatic Leukodystrophy

2005-02-13T10:29:00.000-05:00

Todd's Story by Bobbie Daniels

Todd was born Feb. 2, 1998 in Jacksonville, FL. He was a perfect, healthy boy. The family moved to Virginia Beach/Norfolk, Virginia in Dec 1999. During this time Todd was diagnosed with Dysarthria. Which is an oral motor delay. He did not talk till he was about 3. After receiving speech services from the school system, they said he was developmentally delayed. In July 2002. We transferred to KingsBay, GA. When I signed up Todd for Pre-K. They did all his testing and evaluations for a new IEP. That is when the physical therapist and occupational therapist noticed he did not like using his left side. Todd also walked a little funny because he has flat feet. So Todd's pediatrician sent him to an Orthopedic Doctor to get checked out. That doctor said he was fine bone wise and if he had to diagnose him it would be with Cerebral Palsy. Well this was in Nov. of 2002. He referred him to an Neurologist. We could not get an appt. till Feb. 2003. During this time Todd started wetting the bed, having accidents during the day and was falling a lot. The pediatrician called them and said hey, we really need him to get seen. Well they could not get him in earlier so they scheduled him for an MRI before the appt. So, they did a brain and spine MRI before his appt. When we saw the Neurologist he had the results from the MRI. He said that the brain MRI came back positive and he would have to get with a few more doctors. Within a week we had an appt for Genetics to run test. On April 1, 2003 he was diagnosed with MLD. What a nightmare. He loves baseball and any other sport also. He would not go anywhere without his glove. He got to play T-ball in the spring. By the end of the school year in May he really could not walk long distances. Dreams Come True in Jacksonville, FL sent him on a dream to Walt Disney in July 2003. By the time school started in August 2003 Todd was in the wheelchair full time. On November 7, 2003 Todd had a G-Tube placed for feeding. He can still eat soft things, but not enough to keep him nourished.